Barb and Joyce Dorsch have traveled a rocky road before coming to Mosaic. Joyce shared her daughter’s experience and how Mosaic has improved her health and social life. Here is her story.
“My daughter Barb was diagnosed with Asperger’s when she was 40. This brought tears to my eyes because for the first time in her life, I finally knew.
In 2010, I fell and broke my hip at work. I contacted behavioral health to try to find a place for Barb to go. The only place available was a nursing home.
The nursing home was geared toward people ready to die, they didn’t understand Asperger’s. They gave her too powerful anti-psychotics and she was not handling them well. She was scared and started yelling to get what she needed.
The first nursing home was not going well and the second one was somewhat better but pretty much the same in all. Then the state gave waivers for people who wanted to go back in the community.
At the waiver home, physically she was not doing well. Things were not working out there. She needed to move. One weekend she missed 11 doses of insulin because her medicine didn’t come in and her staff did not realize she even needed it. I was advised to move her elsewhere.
My sister invited me to a Church Women United meeting where Mosaic was speaking. As I listened to them talk, tears came to my eyes. I could see how they helped difficult people. I felt God was opening a door for Barbara. I was 78. The time had come to help Barbara find a home.
I talked to staff but there were no openings. I was impressed with Mosaic and called again to see if there were openings but there were none.
In the second group home, she would have physical complaints when she was upset and since they didn’t have a staff nurse on hand they would just take her to the hospital. She was on 12 rounds of antibiotics and 5 anti-fungal’s in less than three months. She was hospitalized 41 days out of three months.
The final straw came when she complained of pain and the ER doctor prescribed her Vicodin. She is allergic to codeine. At 2am, she said she couldn’t breathe, she was rushed to the emergency room and stopped breathing. They resuscitated her and gave her a breathing tube. She was transferred to the ICU. The provider said they couldn’t meet her needs.
The ICU doctor took her off all meds and sent her to 30-60 days in rehab therapy to strengthen her. Over this time I kept Mosaic informed to see if they would accept her.
I was desperate, calling out to God, “Oh where is Bethphage?” I heard of them when Barb was in High School but Nebraska was so far away and at the time I had not given up hope things would get better. It was hard, it was like a door opened but nothing happened. It was right down to the wire.
Then I not only found out Mosaic accepted her but I found out Mosaic’s roots. They started as Bethphage. My experience is that Mosaic is different from other providers. They are truly committed to a life of possibilities for individuals with disabilities.
Mosaic has helped her and understood her sooner. She has made dramatic changes in the past couple of months. Her behaviors have pretty much disappeared. When she came, she couldn’t walk, was on oxygen 24 hours and day and was about a hundred pounds heavier. She was incontinent, and pretty much couldn’t do anything for herself.
Now she walks independently, most of her bathroom visits are independent, she is down to just 5 units of insulin, and she can wear normal clothes without fear. She has learned good coping skills and social skills. She can express herself more clearly. Now she gives hugs freely and is more cooperative and less stubborn. A joy she has is helping others, and she can do it when she isn’t troubled by not feeling well.
It illustrates how much Mosaic has been willing to do to help her overcome her medical and physical problems. Her attitude has improved and staff says she’s a loving and caring person. She loves to joke.
She doesn’t communicate her feelings well but she wanted her picture on the wall. What she wanted was to know this was home and she wasn’t going anywhere else.”